Category: Uncategorized
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My tumor and my blood are now in Germany being analyzed. I hope they’re having fun and eating lots of delicious encased meat! This morning I got out of bed, stood up, and my right leg went full Frankenstein mode. We hit it pretty hard in PT yesterday, so it was a little too ready…
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I received Opdualag infusion number 2 on my 47th birthday this week. Bristol-Myers Squibb approved my application for free infusions for a year. Which is good, because this is an off label use not covered by insurance and each infusion is $25,000, give or take. I’m starting to settle into life with Optune attached to…
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He’s threatening to grow too big for it but we aren’t there yet.
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Last week I went to New York City for what I thought was going to be another routine MRI and dose of SurVaxM. Unfortunately, that was not the case. In the 9 weeks since my last dose and 7 weeks since my last MRI, a new 17 mm tumor popped up in my corpus callosum.…
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The following is a moderately edited email I sent to work/colleagues on 9/22, the day before I got my diagnosis and discharge from the rehab hospital: Good morning! I wanted to send an email with a bit (actually a whole lot, feel free to skip to the end if you like) of backstory and an…
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That’s the 2.9cm (roughly ping pong ball size) tumor on 9/1/25 and the hole in my left temporal lobe where the tumor was removed on 9/2/25. Here’s me immediately after surgery:
Tumor Boi Summer (and Fall and Winter and Spring and Summer again) 